A hard, hard, hard day.
Owen had another episode at school today and Lily went and got him and took him to the neurologist's office immediately. Jason met them there and I got there shortly. We had been under the misunderstanding that if they could get an EEG as close to an episode as possible, it might show something but one was not done and according to our community expert here, it would have done no good anyway. The doctor said that although he doesn't like giving medication when the specific problem isn't known, he prescribed medication which was confusing, to say the least.
And an MRI has been ordered and most importantly, the process has begun to get Owen into the pediatric epilepsy center down at the University of Florida at Shands which is supposed to be a very, very fine place.
We watch, we wait.
This is taking a toll on all of us, of course. Everyone in the family is involved. Jessie picked up Gibson from school and took him home with her, Mr. Moon got on the phone and called Shands himself. Hank and May are offering whatever support they can give. I am texting our community expert and getting her advice and wisdom and sharing that with Lily and Jason.
And I'm sure that Owen doesn't have the slightest idea what to think.
BUT. Our family is built on love and support. That is never in doubt and never will be. Emotional, physical, financial. We have all of the pieces in place and this is when their value, worth and truth is most important and obvious.
And all will be well. Owen will be fine. He is sturdy and healthy. He is strong and he is smart. And he is loved and all that can be done to figure this out will be done.
And that's what my day has been like. I sat in the waiting room of the neurologist's office to be there if they needed me to take Maggie and for a moment, I thought I might pass out. I've never passed out in my life. I got myself together and went to the women's room and peed and washed my face with cold water and took good breaths and went back to my seat and soon enough, Jason and Maggie came out, followed by Lily and Owen who was glad to see me and Maggie was gorgeous and wanted to walk around and wave at everyone who would look at her because that's what she does and then we went and got some lunch and Owen ate chicken and noodles and fruit and then Lily called Shands too and made the calls to get things together to get an appointment and Jason and Owen went and picked up Gibson and Lily took Maggie home where she made more calls.
And making calls for Lily is as hard as it is for me.
She and Jason are the most amazing parents and I am so proud of them.
I went to Costco and bought an organic turkey and balsamic vinegar and then to Publix where I bought butter-flavored Crisco to make the pie crusts and now Mr. Moon is on his way to auction to buy cars for clients because this is how he supports us and provides for his family.
And now, because everything has been so hard and so strange and so difficult lately, I want to end with a video that Lily made the other night of August watching his very first cartoon on TV which was "Finding Dory." Lily reports that he watched for such a long time and she made popcorn and he sat on the couch and watched and laughed and ate popcorn like a grown-up.
We have much to be thankful for. Because of it all and despite it all.
Much love...Ms. Moon