Monday, January 14, 2013

The visit with my mother did not go well. They so rarely do but this was on the horrible scale.
There are so many reasons. Some of them obvious- she is still in a lot of pain. She is miserable. She is at the end of a life that has held a great deal of sorrow and pain and there has been no redemption at all and no reward for any of the tribulations she's been through and in fact, it would almost seem that she is now being punished, or at least that is how it seems to her and she is angry about all of it.

The litany of complaints is repeated over and over again. Word-for-word and I realize this is part of dementia but it all makes me feel as if I am expected to do something, anything, to make it better and there is absolutely nothing I can do. She is now telling me stories about my biological father that I've never heard from before I was born and they add another layer of suffering to the whole story of her life.
"Why didn't you leave him?" I asked her today after one of these stories of drunkenness and betrayal.
"I loved him," she said.

Well.

There are so many complaints, new horrors, the old ones, there is nothing positive whatsoever. After an hour and a half I had to leave. I tried to help her eat a little but she doesn't want to eat and she says she's nauseous all the time and I'm sure she is. They are going to try and change her pain medication to a patch to see if that will help. Her oxygen was low today and they had her on a nasal cannula and the machine sounded like a human being snoring.
It was the most comforting thing in the room.

I feel completely beat-down. I am exhausted. I am angered at myself for letting all of this affect me so much, not to mention the way it affects my conversations with my children, my husband. I take full responsibility for allowing her to affect me this way. It does not make me like myself in the least.

That's it. That's all I have to say tonight. I know that tomorrow will be another day and these feelings will fade and other feelings will take their place as they do. This is the way of it. And feelings are merely feelings, etc. And so forth.

I feel like shit. But I know I am not.

16 comments:

  1. ah, honey, be gentle with yourself, be gentle with yourself. you cannot fix this. i know you wish you could, may even think you should be able to, but you cannot. this is the end of life. it's horrible and sad and there is no redemption in it, as you say, none at all, but and all we can really do in the face of it is practice acceptance of what cannot be controlled, i know, it's a really hard one, i struggle with it myself, and sometimes, i run and hide for a while, but really, all we can do is be there and give a glass of water and offer a touch and let it be. i sense you are judging yourself so harshly over the fact that you cannot make this all better for your mom, and that sometimes you might just feel as if you are suffocating with helplessness and want to get away. It is like that at the end. Be gentle with yourself. There is a lot of "stuff" coming up for you. Don't judge any of it. Let it all just flow right on through.

    Loving you,
    Angella

    ReplyDelete
  2. Awful stuff. Pain. Regrets. The constant litany. There's a tiny taste of it here. But not as much. I wish you all the best, Mrs. Moon, in your handling of it.
    And, yes, what Angela said.

    ReplyDelete
  3. Mary,

    I am so sorry that she is telling you even more stories that you really do not need to hear. I'm sorry that her pain is being dumped in your lap again.

    I know you have a ton of peeps, but you can call me anytime day or night (I'm usually up anyway these days).

    Maybe a boy fix tomorrow?
    Love you and thinking of you,
    m

    ReplyDelete
  4. Sorry I've been away. Thinking of you lots and catching up. I will email you directly.

    Hugs.

    Kimberly

    ReplyDelete
  5. Mrs. Moon, I'm sorry you are burdened with your mother processing her own life in front of you. I don't comment often, but I do read your blog daily. My words will not come out as wise as yours, so I will just say that I am sending good thoughts into the universe for you.

    ReplyDelete
  6. I am so sorry you are going through this. It's agonizing on so many levels and I totally understand. You are being so helpful to your mother by just being present.

    Georgie

    ReplyDelete
  7. I understand. You know that. And as I listen to the gibberish talk and see my MIL revert to being a baby again both in talk and action, I feel selfish for wanting it to end. My wife is tired, sad and worn down. But these are her parents and she wants them to be comfortable which they are. Still the visits are difficult. Her dad was not feeling like going out to lunch today. So she will go back tomorrow to take him to lunch. And so it goes. Please just put me down when I get like this. That's my wish.

    ReplyDelete
  8. This comment has been removed by the author.

    ReplyDelete
  9. Damn I wish I had some advice. Take it easy and do not under any circumstances go visit your mother daily. There is no good that can come from that. That is all I have. That, and remember how many people in the flesh and in the blog love you.

    ReplyDelete
  10. I'm so sorry. I know a little bit about the fear of drowning in your parent's sorrow. I don't know what to do about it. The only thing that helps me is remembering that I'm no more in charge of their happiness than I would put my own children in charge of mine. Of course some parents DO hold their children responsible for these things, but they are in the wrong. Of course you know that. You are wiser than I by far. Just know that I'm sorry and I'm sending you lots of good clean energy. I'll send it for your mother as well.

    ReplyDelete
  11. Yes - this is the hardest time. I could only visit my parents 20 minutes a day and sometimes I felt I was only visiting so the people working there would not think me awful. No one knows what we've been thru and how hard this shit is. I don't even have anything on how I would have done it differently, I am just glad it is over. I agree with Syd about living longer than the quality of life allows... We are kinder to our pets. I repeat the Serenity prayer repeatedly in really tough times. It calms. I know how you feel and I am sorry. s Jo

    ReplyDelete
  12. I'm adding my virtual hugs and good energy to the circle for you. But Birdie has some wonderful, practical ideas! So glad you know your own worth. xx

    ReplyDelete
  13. Jesus, how could it NOT affect you? You'd be half-robot if it didn't, and those horrible stories I'm sure are sending you straight back to the little girl you were, in your mind, and that's a frightening thing. I love you -hang in and hang on.

    ReplyDelete
  14. Oh, Ms. Moon. I am so sorry. I deleted my comment. Sorry for my thoughtlessness.

    ReplyDelete
  15. When my FIL was in hospital, I couldn't go see him. I just couldn't bear it. I felt the same with my MIL. You have to give yourself permission to get the heck out of there when you feel like you can't handle it. It's okay.

    Dementia is such an asshole. It distorts memories and causes hurt feelings and ruins the people it ravages.

    Big hugs to you.

    ReplyDelete
  16. sending you the strength of lions. a whole damn pride of lions.

    xxalainaxx

    ReplyDelete

Tell me, sweeties. Tell me what you think.