Tuesday, January 8, 2013

Such Confusion

I feel as if I am drowning in something. Just pure drowning. And it's messy and it's so thick and I can't see to the bottom of it any way at all. There may be no bottom. There just may not be.

There are many things I don't really say here, believe it or not and I'm sure you do because I'm sure you keep many things close to your chest. Things that you may not want to say out loud to anyone or maybe only to someone you know and completely trust with all of the parts of you, the crusty, ugly, hidden-in-the-dark parts and yeah, there's some of that stuff in this drowning.

Anyway, that, yes, and I am home. I hit the wall hard this afternoon and May came up to the hospital and she is a very capable and strong and loving woman and I left her there with Mother and I came home and I slept some and I'm going to sleep here again tonight because my boys are coming early, early, way before dawn and by god, I'm going to spend that time with them. Unless some emergency comes up, of course.

I can't really figure out why they aren't transferring Mother back to Westminster. They've got her on a heart monitor and this and that and she keeps saying she wants to die and has been saying this for a very long time and she practically has DNR tattooed on her forehead so I'm not quite sure why they're so aggressive about all of this. Her heart has shown no signs of any failure at all. At Westminster they would tend to HER, I am thinking. They would provide comfort and personal care, unlike at the hospital where it's all about her I&O, her meds, her blood sugar, her hours sitting up, her daily walk down the hall.
I mean, sure, those things are important but what we are we doing here?
She's not really eating. She's hardly drinking. Things are not going to get stabilized, medically speaking, as far as I can tell while this is going on. She's nauseous and yes, they give her medicine for nausea, but it's not really helping. She is in a great deal of pain and there again, there is only so much the pain medication can do.
It is all, in a way, like torture. If getting up and going ten steps to the bathroom makes you vomit, that is simply torturous.

Meanwhile, I'm not there tonight and I won't be there tomorrow until much later. I had to take care of myself and part of that is sleeping and part of that is being with Owen and Gibson. That's all there is to it.

Yes. I am drowning but I am not allowing myself to slip under entirely. This would serve no purpose whatsoever and if I can't see the bottom, there is nothing for it but to look up where I am quite certain there is light.

Addendum: My brother called. He's up at the hospital and she is doing it again. The crazies have come upon her. This is actually a common thing for people in her situation. It is called Sundowner's Syndrome. 

I really don't know what to do. Part of me knows for sure that my presence would only agitate her and part of me thinks that I should be there anyway.
I don't think there is a right answer in this case. I am waiting to hear back from my brother who is trying to talk to someone at the hospital who might know more about this and what we can do, in the very short-term. Like right now.

That was one hell of a fall my mother took the other day. One hell of a fall and it's going to be quite some time before any of us really is able to pick ourselves up and go on.

19 comments:

  1. I have so much I need to say out loud (or very least write on my blog) but I too am keeping silent. I don't know if it is easier to keep quiet or to spill it. All I know is ever day that I hold it in I get more and more angry.

    I hope you feel better when you see your lovelies and have a good sleep.

    ReplyDelete
  2. Honey, there's a wee package headed your way. May it sweeten your life a little.

    XXXXXX Beth

    Thinking of you these days.

    ReplyDelete
  3. Oh Mary. I'm so sorry you--and your mother and your brother and your whole family--are going through this. For whatever it's worth, the lot of us out here in internet-land are holding you in our thoughts. And loving you, promise.

    ReplyDelete
  4. This sucks so so bad.

    I totally get the not sharing everything on the blog thing. Yes, I think the vast majority of people have some things they just don't put out there.

    I hope all of your "things", whether you blog about them or not, will stop drowning.

    Really hoping that.

    If there is nothing you can do at the hospital right now then stay where you are. You know you need your sleep and your boys.

    ReplyDelete
  5. Oh, honey, i know, i know. you have got to take time for yourself in the midst of all this, especially you, who (like me) can't really function optimally without some time to hear yourself think. it's a tough time and the obligation you're probably feeling, even when you can't do anything about anything, is a bitch. i've been through similar with my aunt and always, always, the hospital is the most unsettling place and not just for your mom. i do hope she can go home soon.

    ReplyDelete
  6. So sorry for what you're all going through, and I hope the pain will
    ease and things will stabilize soon.
    A blessing that you have your family around you. Wishing some restorative sleep for both you and your mother.

    ReplyDelete
  7. Jesus honey... I agree, they should send her home to Westminster.

    Seems like they could give her a small sedative to calm her down a bit.

    I know you didn't ask, but... I think you should take care of YOU right now. You have been there all day and there is really nothing any one person can do for her. I'm firing you! ha!

    sending wishes of normalcy and peace, xo m

    ReplyDelete
  8. thinking about you- take care.

    xxalainaxx

    ReplyDelete
  9. Oh, Mary......you MUST jettison the guilt! Tearing at your own flesh will not help the situation. Nothing will really help the situation. It has reached the Total Awfulness Stage. Your Mother must suffer through it, but it is insane for everyone connected to be in such agony too. Save your strength.....recharge with your boys.....don't be foolish and think you can control or fix things, and what one cannot control or fix one must push aside and quietly endure....don't let the hurting sink you too. Let logic in , please. You CAN do this. You can be more helpful if you are not so mired in wild emotion. As Mr, Moon said,,,,,,this is a part of life, and the slippery slope and death are a part of life. Don;t think I am a monster......Sorry, but that's how it is. I am pulling for you.

    ReplyDelete
  10. I hope you are resting now. Enjoy those boys and may they send her back promptly.

    ReplyDelete
  11. That Sundowner article is WILD. How fucking weird. I, too, am sorry that you're going through this and glad that you have those little munchkins to watch tomorrow. Please take care, drink a lot both alcoholic and non and most importantly know that your community, those you've nurtured out here, are listening.

    xoxxo

    ReplyDelete
  12. My MIL had the Sundowner problem. The caregivers would sing to her but finally she had to have medication to be less agitated.

    ReplyDelete
  13. Oh this brings back so many unhappy memories. The burden of it all almost dropped me. But then I too just did what I could to be able to live with myself. It sounds like you are doing what you can and taking care of yourself too. I am glad you will get a dose of your love boys tomorrow. Thinking a lot of you these days. S. Jo

    ReplyDelete
  14. My only advice is to take care of yourself. I think your impulse for sleep and some home time is correct, especially because other family members can take turns at the hospital, and I hope whatever happens it's best for your mom. Thinking of you and sending good wishes from across the pond!

    ReplyDelete
  15. Yes, you must rest. Reinforcements have arrived.
    Wishing you the best of luck. Keep treading water.

    ReplyDelete
  16. I remember such awful nights in the er with my dad... Yes it is just life but its still shitty when you're in the midst of it. Hope hugs from your boys help, sending more across the ocean

    ReplyDelete
  17. I had someone with horrible sundowners years ago. Trazedone right after lunch really helped keep it in check.
    Whatever it is you're keeping in, Ms. Moon, I hope it resolves quickly and leaves you in peace.

    ReplyDelete
  18. Thinking of you Ms. Moon. Hang in there. I'm glad your boys are close. xo

    ReplyDelete
  19. Thank you for that article about Sundowning. Totally new to me but very very interesting. I am sorry to learn that your mom is giving your worries and grief. You don't need that. Take good care of your inner child and try to step out of this situation when you can and need it. Elderly parents can be such a strain on the normal life, when often people have enough on their plates without the added worries. Hug from England...

    ReplyDelete

Tell me, sweeties. Tell me what you think.