Tuesday, April 30, 2013

Such A Small Thing

Jesus. I was feeling pretty okay about everything this afternoon and I'd had my walk and filled out my forms to take to the dermatologist and it felt so great to check off all the diseases and conditions I do not have and to be able to say that I am not on any medications and I just felt so grateful and healthy, you know?
And everything went fine at the doctor's. Really it did. I just have a few spots of Actinic Keratosis which is a very common sort of skin damage and which is also called a precancer which, according to the doctor can result in a true cancer in 20% of cases or, if you believe the hand-out brochure he gave me, 10% of the time. So, you know. No panic or anything. And I've had these before.

Once, my old dermatologist simply froze a place on my face where one was and that's actually a place which has "reactivated" but that was a long time ago. It left a white spot, that freezing treatment and the doctor today told me that he doesn't like to use this treatment on women's faces because of that resulting white area. And I told him that I really am not a vain woman at all, not that not wanting white spots on your face is vain but really, it doesn't matter much to me. I mean shitfire. I'm not going to win any beauty contests from here on out. And if I do want to cover them up, that's easily done with a little make-up. But he really didn't want to discuss that treatment and for some reason, I let it go,  not even  thinking much about it until I left and realized that what he had said was incredibly sexist. That he didn't like to use that treatment on "women's faces." WTF?

Moving on.

There are drugs you can use on your face which burn the crap out of it thus, eliminating the precancers but I have done this before and I will never do it again. And the doctor even admitted that anyone who has gone through this regimen will never do it again. It was horrendous and painful and scary and weird and I bled on my pillow and I scared small children and it goes on for a month.
So no. Not that one.
There's a "new" drug, he told me, which doesn't cause that reaction but you have to use it for three months, twice a day, instead of one month, once a day. I told him that I put stuff on my face twice a day anyway so...sounded okay. He said it was very expensive but they'd give me a coupon to use to help with the cost if I decided to go that route and I said I would certainly consider it and he had the 'script written out and given to me along with the coupon. And a few samples.
Now there's another possible treatment and I could tell this was the one he likes best. It's a solution which goes on the area and then you undergo fifteen minutes of a light treatment. Done. Except that for forty-eight hours you cannot expose your skin to the sun. AT ALL. You gotta do like a mole and go underground.
Basically.

All right. Diagnosis given, possible treatment options explained.

I hopped in the car and drove over to Lily's to kiss the boys and we decided to go to Costco. I took my prescription and the coupon to the pharmacy there and the very, very nice pharmacist who was named Harsh, who most certainly was not, said, "This is a very expensive medication."
"I hear that," I said. "But here's a coupon."
He put in all my insurance information (and we have very, very basic insurance which doesn't cover much, believe me) and announced that without the coupon, the three month treatment would cost $790.00.
Are you fucking kidding me?
Then he put the coupon information in.
"I don't believe this," he said.
"What?"
"They have discontinued this program."
We checked the coupon again and it has not expired. But the program, according to his information, most definitely has.
Yes, I will be calling the dermatologist's office tomorrow to inform them of this. You better believe it.
And I will probably set up an appointment to get the damn places frozen and live with the white spots. I mean- the light treatment may work well, I don't know. But that costs three hundred bucks AND there's that staying inside for 48 hours thing. And it involves some weird chemicals too.

So it was all sort of crazy and the really, really fucked-up part was that Harsh told me that the drug in the three-month, $790.00 treatment is actually a very, very old drug, almost a hundred years old and is not expensive in and of itself. And that the treatment has nothing in it BUT that drug.
He kept saying, "I'm so sorry," and I kept saying, "It's not your fault," and we agreed that the pharmaceutical industry is fucked up and ridiculous. And so is our so-called "health care system."
"America pays for the world's medicine," he said.
I think there is more to it than that. Things like greed and lobbying and so forth. But ain't none of it good. And look- my life does not hang on the balance according to whether or not I get that drug. I know that. This is just a small, small thing. But still, it's frustrating and as Lily said, for the truly poor in this country, it is almost impossible to stay healthy. We all know this to be true. And I think of Elizabeth and her trials and tribulations with the whole health care industry and the drug companies and the insurance companies as she tries to do her best to care for her beloved Sophie and I am shamed at even saying a word about this.
But it all makes me wonder- how long is our country going to put up with this sort of bullshit? How long?

Well anyway, here I am and here I will be. Until I'm not. And when I die, I'll probably have white spots all over my face and you know what? I will not care one damn bit as I lay on my death bed. Those white spots will not concern me in the least.









15 comments:

  1. Seven hundred and NINETY EFFING dollars -- WITH the coupon? Well. Just. Dayum. I'm black and I'd go with the white spots on my "woman's face" too for that much money. Sheesh.

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  2. America does pay for the world's healthcare, if you look at it in a certain way -- which a pharmacist would, I bet. Many pharma companies sell their pills cheap to the US but much, much higher in places like the third world -- mostly because, unfortunately, most of their drugs are intercepted and sold on the black market.

    It's a really fucked up system. I'll have to dig out my powerpoints.

    I love you. Fuck the white spots -this isn't worth it.



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  3. Hell, what's so bad about white spots???? Better than black spots......if you have white skin that is.....hmmmm.....I am NOT going to try to explain that any further.

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  4. Catching up with you today after bouts of busy this and busy that (including my own blog writing). It's like coming home, reading you, even though I have never been to Florida.

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  5. Oh shizzleshit. It is a cluster. I am glad people like Stephanie are on the job. I hope your white spot is so slight as to be invisible. xo

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  6. Yes, our medical insurance and the like are so maddening I can't think much about it and despite my anger I do feel lucky compared to others. Mi am impressed that you take no regular drugs. You are a wonder. Sweet Jo

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  7. Not only am I stunned at the price but a coupon? Maybe a nice person in Canada (as in me) can send it to you.

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  8. That coupon bullshit is absurd. Why don't they just lower the price of the drug. And the reason why drugs cost so much here is NOT because we're paying for the world's drugs. It's because we have a fucked up system and profits are to be made. And I am glad that you're making a stink about it -- if everyone did, maybe things would change. Or maybe not. Sigh.

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  9. That is just ridiculous. I think you're making a good choice to go with the white spots. My dad has had those keratoses for years (like anyone who's lived a long time in Florida) and he gets them frozen every now and then. Done. I wonder if your doctor isn't getting some incentive to sell the more expensive options and discourage simple freezing.

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  10. Same in Texas. You spend any time outdoors and you get them. I've had them frozen off my face. I went to a young dermatologist a few years ago because I have some on my arms and legs. She pretty much blew them off, part of aging. But I may go back and have them frozen off.

    And really? $790 instead of a quick cheap freezing? Somebody's getting something out of that and it ain't you.

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  11. Seriously, look up the Black Salve!

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  12. Gradydoctor- No. The coupon program is no longer in place. THANKS! drug company. Yeah. I've decided to go with the white spots.

    SJ- I know you're doing what you can to make this a more equitable system and I love you for it.

    Lo- I get your point. And I agree.

    Andrea- I am so glad you feel at home here. I am also so glad that Alice may be able to hear better soon. That was such a beautiful post.

    Maggie May- I really don't even care. Hell, I already have dark spots all over. Whatever.

    Sweet Jo- I'd probably be advised to be on some medications but if you hardly ever go to the doctor, that's not much of a problem.

    Birdie- Thank you so much. If I am ever in a situation where a drug is of great importance to me and I can't get it here for a reasonable amount of money, I'll let you know. This one ain't worth it.

    Elizabeth- Yeah. Coupon. Whatever. Even if the program was still in place, the treatment would cost me over five hundred dollars which is still ridiculous.

    Steve Reed- The freezing thing is not paying for his magical light treatments. I already figured that shit out.

    Ellen Abbott- Yep. For sure.

    Jo- It's hard for me to believe the claims made for black salve. I'm sorry but reading about something on the internet just doesn't make it so for me. I am a hippie but I am also a pragmatist.

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  13. White spots you say? Beauty spots, I call them.

    For what it's worth, there are two members of my family who have been living with these pre-cancer spots and no treatment for over 15 years now. They are what we would call cranks, i.e. fully convinced that pharmaceutical medicine is out to kill them. They are weird but have healthy skin.

    But I would still go for the white spots.

    For the life of me I simply cannot imagine what it is like living and raising a family without affordable health insurance. In a country that has such amazing medical research facilities etc.

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  14. I like the white spots. Big Pharma is ridiculous. And no--people who don't have insurance are literally dying from lack of care and having preventative care.

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  15. I echo everyone else's comment. Big pharma sucks.

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