Y'all, I just have to step in and say that A. is at one of the foremost medical centers in the Southeast and before that, he was in a very decent hospital in Tallahassee.
His doctors, both infectious disease and neurological (and who knows what all else?) know what they are doing. He has had far more tests than I have even heard of. He has been tested for tick borne diseases and mosquito borne diseases and so many bacterial, viral, parasitic, and fungal diseases. Also DNA viruses. In fact, they've just done a test that uses a patient's plasma to detect over a thousand of those.
A thousand.
Of course he has had lumbar punctures. More than one. He got one on either the first or second day of his stay in Tallahassee's hospital and has had a least one more that I am sure of.
So please know that there is nothing that any of us could come up with (unless you are a specialist in any of these fields) that is going to really help, and although I appreciate your thoughts and your suggestions, let's let that go for now. He may not be in the very best hands in the world to try and figure this out, but Shands is pretty close to that.
So thank you. I'll be reporting in if anything changes because it seems like you are all caring people who would help if you could.
Love...Ms. Moon
Yes, I do understand and everyone needs to be left to do their very best and try to figure this out for A. We just lost a very dear friend to cancer...he didn't survive his first brief round of infusion chemotherapy. It's like a sucker punch to the diaphragm. What's worse and forgive me for the whinge...but I've been asked to do the eulogy. I'd rather set my hair on fire and run screaming out onto the lawn, but of course, we love him and I will do it. Life sucks but we do our best and hang on. Hugs to you Mary. X
ReplyDeleteThank you - important reminder for lots of medical situations!
ReplyDeleteCeci
A 😢
ReplyDeleteWell said. Keeping all good thoughts.
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